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Printed from https://web1.writing.com/main/profile/blog/sybaritescribe/day/7-11-2025
by JACE Author IconMail Icon
Rated: GC · Book · Personal · #1503918

A blog of no uncertain musings. What goes on in my mind is often a source of wonder to me.

My mind and my life are wonderous things ... as are yours, I'm sure. I have more slips of paper and pages of notebooks with musings and thoughts than I really know what to do with. Someone, actually several someones, have suggested I start a blog ... or a journal as a means of focusing some of this mental energy.

To be honest, I don't even know what the difference between a 'journal' and 'blog' is--or if there even is a difference. Read on, my friends, and you can judge for yourself whether it even matters.

And so....

Me on top of Mount Desert Island, Acadia National Park, off the coast of Maine


I'm JACE. Yep ... that's me! And somewhere in all my writings my last name may be posted. But I'll just leave it at Jace for right now. I'm 70 years old and heading full tilt to 71. It's strange that while I'm going through some rather serious medical issues, I still consider myself to be in the prime of my life--pretty good shape physically AND mentally, though I don't run for competition anymore *Smile*. I love to ... dang, if I put this stuff here, I won't have anything for my blog.

Guess you just have to be patient until such stuff leaks out. *Smirk* Perhaps 2025, having embraced my retirement, will see more participation in my journaling efforts.

Well, one can hope....
July 11, 2025 at 10:22am
July 11, 2025 at 10:22am
#1093227
Yesterday, I came across a blog entry of another member whose husband's two doctors are offering conflicting information regarding which medication he should be taking for his condition. It turns out, I have a similar situation.

A few hours after I responded to that blog, I received a call from my VA Oncologist reminding me of my upcoming appointment, during which I have a blood test scheduled, a meeting my Oncologist, followed up with an immunotherapy treatment. That treatment had been put off several times while I pursued alternate treatment means, including potential clinical trials.

I met with a University of Kansas Cancer Center Oncologist on 30 June, who strongly recommended that I not enroll in any current clinical trials since they were not geared toward my strain of kidney cancer. The anticipated adverse side-effects would far out-weigh the benefits I might reap ... if any. She also believes that the results of my surgery in April stated my cancer was removed and had not metastasized to other areas in my body, indicating no need for any follow-up immunotherapy at this time.

Paraphrasing, to immunotherapize (VA recommendation), or conduct monitoring CT scans every three months (UKCC recommendation).

Until shown otherwise, I'll pursue the monitoring CT scans.




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Printed from https://web1.writing.com/main/profile/blog/sybaritescribe/day/7-11-2025