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Random babblings of a confused miniature writer |
| A blog/journal just to babble/dabble in to try to keep my friends up to date on my pitiful existence. |
| Today did not seem real. Like something that was happening to someone else. I got my port put in today to receive my chemo. I had to be at the hospital at 9 in the morning and didn't get back home until 4. No one before today gave me any indication that this was going to take all day. So I spent most of the time flat on my back in a hospital bed. They sort of told me what was happening as it was happening but for the most part I was left in the dark. I got told two main things before I left the hospital: Be sure you call and tell Dr. Hanna that the port was successfully inserted so they can begin to schedule the chemo as soon as possible..... Do not take a shower until at least tomorrow and be sure to stay away from the port when you do.... It's fine I guess. It is just they covered my neck and both my shoulders in iodine. By the time I got home it was dry and sticky. I move my head and my neck feels almost like velcro. I don't know. I keep telling myself that my life shouldn't center around this cancer. Just when I think I got everything in hand something comes flying in from left field to screw with me. I had a driver all set that had been a gift from above, I swear. I called her and texted her and everything was going smoothly. She wasn't even intimidated when I didn't know all the details of my appointment. Today after getting home from this appointment I was told my insurance won't cover her. Stupid Humana. It would cost me $15 a trip to keep her on. DOES THE UNIVERSE EVER UNDERSTAND THAT I CAN BARELY AFFORD MY MONTHLY BILLS???? I definitely believe that money is the most evil thing on the planet. Oh well. I'm going to be home alone tomorrow. Maybe I'll have the time to relax and get a grip on things again. |
| It's sinking in. Went to a consult about what to expect during chemotherapy. It doesn't sound as terrible as what I thought it would be; but it comes close. I will be going through six three-week cycles. The first week will be one day of four to six hours of chemo. The other two weeks I will be meeting with a doctor or nurse's aide to see how I am doing. It sounds like making me as comfortable as possible as I go through this is top priority. I don't know how many times the nurse repeated for me to report any discomfort and what phone numbers to call. This is really going to happen. I am supposed to get a call on Friday telling me what time on Monday I am going to have the port put in. I am going to be having chemotherapy to shrink the massive carcinoma in my uterine area. The only thing that scares me now is that the chemo won't work. Either way I am having surgery afterwards. I hurt. I'm tired. I'm nauseous. I'm lightheaded. I don't want to do anything but lay around and sleep. |
| Catch up from Wednesday: I went and consulted with the local oncologist, Dr. Hanna. He went over Dr. Sakr's reasonings with me and that he was inclined to agree. I have to go have an echocardiogram to make sure my heart will handle the chemo, then have a port put in so the chemo doesn't damage my veins. I also have a consult with a nurse on the dos and don'ts of receiving chemo. That's all happening next week. I'm assuming the week after that I will start chemo.... They realized in the house today that I can't be doing all the crap they had assigned to me. Taking Prince out is a hazard with the steep, short back steps and the lightheadedness I've been having. So has standing outside or even just standing at the front door. Believe me I'm beginning to think I need a wheelchair. I'm debating if I might take my walker with me to my appointments next week. I'm just so tired all the time and weak. My back has been killing me. I have been throwing up for three days. My head is constantly swimming.. I just wish I knew what I could do for any of it. |
| On Monday, I spent 45 minutes waiting for a ride that was to take me to my appointment on Tuesday. Today I kept thinking it was Thursday. I don't want to know what the weekend is going to bring. This new OTC medicine I am taking is great with my pain and everything but it's been seriously screwing with my head. |
| HideyHo Neighbor! Went to a 2nd Opinion in in March which was basically a waste of time. The only reason we had asked for a 2nd opinion was because we wanted to see if I could see a Gynecologist Oncologist in Port Huron....... So I went back to see Sakr on the 8th. I discussed the options, and we agreed on Chemotherapy. I made it clear that I want that done in Port Huron. So I am going to see Dr. Hannah Youssef on the 16th @ 2:30. I need to make a call to see if I can get transportation. If not I can take the bus. This will just be our first meeting so I highly doubt there will be any treatment done that day. One step, one move, one small leap forward. Merry Meet and Blessed Be then Merry Meet again!  |
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